Hope With Answers: Living With Lung Cancer

09.1 - Is it safe to participate in clinical trials during COVID-19?

Are clinical trials safe to participate in during COVID-19? Clinical trial enrollment across the board is down and much of the issue is the fear patients have about going to a hospital, especially as lung cancer patients in an immunocompromised state. Today we talk to KRAS patient and founder of the KRAS Kickers biomarker group Terri Conneran and a KRAS researcher who is currently enrolling patients in a new KRAS clinical trial. We will give you tips on how you can keep yourself as safe as possible and still get the treatment you need.
Guests
Terri Conneran, Founder of KRAS Kickers
Dr. Hossein Borghaei, Chief in the Division of Thoracic Medical Oncology at Fox Chase Cancer Center in Philadelphia, PA
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.
Episode 09.1 Show Notes

08.3 - How did lung cancer groups rally to inform patients during COVID-19

Living with lung cancer comes with many challenges, especially during the COVID-19 era. Unfortunately, information about how COVID-19 affects lung cancer patients is hard to come by. Stepping into this void, lung cancer advocacy groups have worked together to produce consistent resources with the latest learnings, updates, and information to help those living with lung cancer during COVID-19.
Guests
Janet Freeman-Daily is a lung cancer patient and activist who brings her engineering background to research advocacy.
Upal Basu Roy, PhD, MPH, LUNGevity Vice President of Research. Dr. Roy is responsible for setting strategy and overseeing LUNGevity’s scientific research awards programs and has a background in public health.
Amy Moore, PhD, Go2 Foundation for Lung Cancer. Dr. Moore, virologist and cancer researcher, is a highly sought-after expert regarding the intersection of lung cancer and COVID-19.
Resource: Coronavirus and Lung Cancer: Joint Statement From Lung Cancer Advocacy Groups
Episode 8.3 Show Notes
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.

08.2 - Getting A Second Opinion: How COVID-19 may be changing lung cancer treatment for the better

A doctor’s visit by computer? A second opinion from thousands of miles away? COVID-19 is changing how health care is delivered for people across the country, but lung cancer patients have been at the forefront of using this technology (telemedicine) to manage their diagnosis for years. Listen in as lung cancer patient and advocate Gina Hollenbeck talks to her incredible health care team of Dr. Raymond Osarogiagbon of Baptist Cancer Center in Memphis, Tennessee and Dr. Ross Camidge of UCHealth in Denver, Colorado about how they consult with each other to provide the best care in a model that may become the new standard in a post-COVID world.
Guests
 
Gina Hollenbeck, Lung cancer patient and advocate
Dr. Raymond Osarogiagbon, Oncologist at Baptist Cancer Center
Dr. Ross Camidge, Thoracic Oncologist at UCHealth
 
Episode 8.2 Show Notes
 
Resources
 
Episode 07.1 – How to get the right diagnosis, the right treatment plan, and the right teamEpisode 07.2 – Do you speak cancer? Learning a new lung cancer vocabularyEpisode 07.3 – Finding a new normal: How to talk to your family about your lung cancer diagnosis & using the Internet wisely
 
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.

08.1 - Living with lung cancer during COVID-19: Managing lung cancer, stress, and anxiety through reopenings

Living with lung cancer is complicated on a regular day, but the global COVID-19 pandemic is creating an entirely new set of complications: shopping, accessing medical care, and getting some fresh air and exercise take on new complexity. As quarantine fatigue increased, so too has the stress and anxiety about the reopening of workplaces and restaurants. In this episode of the Hope With Answers: Living With Lung Cancer podcast special COVID-19 series, we’ll talk to Speakers Bureau member Frank McKenna about how he uses exercise to manage his physical and mental health during coronavirus. We’ll also talk to Board Certified Clinical Health Psychologist Dr. Laura Melton of UCHealth in Denver, Colorado to get her best advice on how to navigate the complicated issues surrounding living with lung cancer during the COVID-19 pandemic.
Guests
Dr. Laura Melton, Clinical Health Psychologist at UCHealth
Frank McKenna, Personal Trainer and LCFA Speakers Bureau
Resources
Episode 8.1 Show Notes
Hope With Answers video series
Coronavirus and Lung Cancer: Joint Statement From Lung Cancer Advocacy Groups
 
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.

07.3 - The First 7 Days: Finding a new normal - talking to your family about lung cancer and using the internet wisely

More so than ever, today it is possible to live a long and productive life with lung cancer. Finding a new normal involves finding support from and for your family, and learning as much as you can about your diagnosis and treatment options. In this final episode of a 3-part series of the Hope With Answers: Living With Lung Cancer podcast called The 1st Seven Days, you'll get advice from lung cancer expert Dr. David Carbone of The Ohio State University on where to find the best information about lung cancer online and hear a group of people living with lung cancer about what helped their own families come to terms with their lung cancer diagnosis.
More so than ever before, it is possible to live a long and productive life with lung cancer. Finding a new normal involves finding support from and for your family, and learning as much as you can about your lung cancer diagnosis and treatment options. In this final episode of a 3-part series of the Hope With Answers: Living With Lung Cancer podcast called The 1st Seven Days, you’ll get advice from lung cancer expert Dr. David Carbone of The Ohio State University on where to find the best information about lung cancer online. Plus, hear about how people told their families about their lung cancer diagnoses, and how they helped their families process their situations.
Guests
Dr. David Carbone, Oncologist at The Ohio State University
Episode 7.3 Show Notes
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.

07.2 - The First 7 Days: Do you speak cancer? Learning a new lung cancer vocabulary

If you've never heard of a thoracic oncologist, biomarker testing, or don't know what information you're looking for a second opinion, you aren't alone! A lung cancer diagnosis can send you reeling into a confusing world where you feel like you don't speak the language.
In this 3-episode series called the 1st Seven Days, the Hope With Answers: Living With Lung Cancer podcast team helps you manage those initial days of a lung cancer diagnosis with a roadmap that helps you find the right doctor, get the right testing, and start to create the right treatment plan. In part 2 of this series, you'll get medical advice from lung cancer expert Dr. David Carbone of The Ohio State University about biomarker testing and how to get a second opinion. Also, get a crash course in the lingo that you'll need to manage your lung cancer diagnosis from people currently living with lung cancer.
Guests
Dr. David Carbone, Oncologist at The Ohio State University
Resources
Episode 07.2 Show Notes
Get Help with Your First 7 Steps
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.

07.1 - The First 7 Days: How to get the right diagnosis, the right treatment plan, and the right team

"I have lung cancer, now what?" The days following a lung cancer diagnosis are often a blur of confusion, fear, doctor's appointments, and tough conversations with family and friends. First and foremost, it feels like treatment needs to start happening NOW, but rest assured, you have time to set up a treatment plan that works for you. In this 3-episode series called the 1st Seven Days, the Hope With Answers: Living With Lung Cancer podcast team helps you manage those initial days of a lung cancer diagnosis with a roadmap that helps you find the right doctor, get the right testing, and start to create the right treatment plan. In part 1 of this series, you'll hear reassuring medical advice from lung cancer expert Dr. David Carbone of The Ohio State University, and find out what a group of people living with lung cancer wish they had known about lung cancer in those first seven days: you have time to get the right diagnosis, the right treatment plan, and the right team.
Guests
Dr. David Carbone, Oncologist at The Ohio State University
Resources
Episode 07.1 Show Notes
Get Help with Your First 7 Steps
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.

06 - What Should I Know About Lung Cancer Clinical Trials?

Cancer clinical trials can be a lung cancer patient's best option for accessing the most promising new treatments. It's important to understand how clinical trials work and how to talk to your doctor about which trial might be a good fit. In this episode of the Hope With Answers: Living With Lung Cancer podcast, we talk to a veteran of four lung cancer clinical trials (and the trials of online dating!) Linnea Olson, lung cancer advocates and great friends Jill Feldman, Ivy Elkins, and Lysa Buonanno about how they incorporate advocacy into their busy lives. Plus, get more detail on what to expect in a clinical trial from advocate Janet Freeman-Daily and lung cancer expert Dr. Ross Camidge of the University of Colorado Hospital.
Guests
Linnea Olson, Lung cancer patient and advocate
Lung cancer advocates Jill Feldman, Ivy Elkins, & Lysa Buonanno
Dr. Ross Camidge, of the University of Colorado Hospital and lung cancer advocate Janet Freeman-Daily
Resources:
Information on clinical trials
Hope With Answers videos about clinical trials
Episode 06 Show Notes
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.

05 - Give Yourself a Fighting Chance: Early Detection of Lung Cancer

Early detection of lung cancer can mean that lung cancer patients have more treatment options and a far greater chance of survival. The 5-year survival rate for those diagnosed before the cancer has spread rises from 18 out of every 100 people to 55 out of every 100. But, the key is being tested for lung cancer early. Many times, there are no early signs of lung cancer in its early stages. Instead, most lung cancers are diagnosed in the late stages of the disease, making treatment more problematic, and as a result, significantly reducing the overall lung cancer survival rate. Today on the Hope With Answers: Living With Lung Cancer podcast, we talk to 2-time lung cancer patient and LCFA co-founder David Sturges about how early detection of lung cancer helped save his life. We'll also hear from lung cancer specialist Dr. Denise Aberle about the importance of early diagnosis. Finally, we'll get an idea of a new type of treatment that may make lung cancer surgery easier to perform and prevent a recurrence.
Guests
David Sturges, Lung cancer patient and LCFA Co-founder
Dr. Denise Aberle, Thoracic Radiologist at UCLA Medical Center
Kellie Smith, Ph.D., LCFA Young Investigator and Johns Hopkins Assistant Professor of Oncology
 
Episode 05 Show Notes
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.

04 - The Lung Cancer Conversation: How to tell family you have cancer

What does it feel like living with lung cancer day-to-day? Lung cancer patient and nurse Gina Hollenbeck weighs in. Plus, we drop in on Jill Feldman and Steven Petrow's discussion about an oft-dreaded conversation: how to tell the family you have cancer. Then, hear from Kim Norris about the recent good news about the impact of lung cancer and what she has witnessed in the development of lung cancer treatments over the past 10 years.
Guests
Gina Hollenbeck, Nurse and lung cancer patient
Jill Feldman, Lung cancer patient/advocate
Steven Petrow, Manners and civility expert and journalist
Kim Norris, LCFA Co-founder and President
Episode 04 Show Notes
Resources  Death Rate Drop: Lung Cancer Research Key
 
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.