Hope With Answers: Living With Lung Cancer

07.2 - The First 7 Days: Do you speak cancer? Learning a new lung cancer vocabulary

If you've never heard of a thoracic oncologist, biomarker testing, or don't know what information you're looking for a second opinion, you aren't alone! A lung cancer diagnosis can send you reeling into a confusing world where you feel like you don't speak the language.
In this 3-episode series called the 1st Seven Days, the Hope With Answers: Living With Lung Cancer podcast team helps you manage those initial days of a lung cancer diagnosis with a roadmap that helps you find the right doctor, get the right testing, and start to create the right treatment plan. In part 2 of this series, you'll get medical advice from lung cancer expert Dr. David Carbone of The Ohio State University about biomarker testing and how to get a second opinion. Also, get a crash course in the lingo that you'll need to manage your lung cancer diagnosis from people currently living with lung cancer.
Guests
Dr. David Carbone, Oncologist at The Ohio State University
Resources
Episode 07.2 Show Notes
Get Help with Your First 7 Steps
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.

07.1 - The First 7 Days: How to get the right diagnosis, the right treatment plan, and the right team

"I have lung cancer, now what?" The days following a lung cancer diagnosis are often a blur of confusion, fear, doctor's appointments, and tough conversations with family and friends. First and foremost, it feels like treatment needs to start happening NOW, but rest assured, you have time to set up a treatment plan that works for you. In this 3-episode series called the 1st Seven Days, the Hope With Answers: Living With Lung Cancer podcast team helps you manage those initial days of a lung cancer diagnosis with a roadmap that helps you find the right doctor, get the right testing, and start to create the right treatment plan. In part 1 of this series, you'll hear reassuring medical advice from lung cancer expert Dr. David Carbone of The Ohio State University, and find out what a group of people living with lung cancer wish they had known about lung cancer in those first seven days: you have time to get the right diagnosis, the right treatment plan, and the right team.
Guests
Dr. David Carbone, Oncologist at The Ohio State University
Resources
Episode 07.1 Show Notes
Get Help with Your First 7 Steps
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.

06 - What Should I Know About Lung Cancer Clinical Trials?

Cancer clinical trials can be a lung cancer patient's best option for accessing the most promising new treatments. It's important to understand how clinical trials work and how to talk to your doctor about which trial might be a good fit. In this episode of the Hope With Answers: Living With Lung Cancer podcast, we talk to a veteran of four lung cancer clinical trials (and the trials of online dating!) Linnea Olson, lung cancer advocates and great friends Jill Feldman, Ivy Elkins, and Lysa Buonanno about how they incorporate advocacy into their busy lives. Plus, get more detail on what to expect in a clinical trial from advocate Janet Freeman-Daily and lung cancer expert Dr. Ross Camidge of the University of Colorado Hospital.
Guests
Linnea Olson, Lung cancer patient and advocate
Lung cancer advocates Jill Feldman, Ivy Elkins, & Lysa Buonanno
Dr. Ross Camidge, of the University of Colorado Hospital and lung cancer advocate Janet Freeman-Daily
Resources:
Information on clinical trials
Hope With Answers videos about clinical trials
Episode 06 Show Notes
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.

05 - Give Yourself a Fighting Chance: Early Detection of Lung Cancer

Early detection of lung cancer can mean that lung cancer patients have more treatment options and a far greater chance of survival. The 5-year survival rate for those diagnosed before the cancer has spread rises from 18 out of every 100 people to 55 out of every 100. But, the key is being tested for lung cancer early. Many times, there are no early signs of lung cancer in its early stages. Instead, most lung cancers are diagnosed in the late stages of the disease, making treatment more problematic, and as a result, significantly reducing the overall lung cancer survival rate. Today on the Hope With Answers: Living With Lung Cancer podcast, we talk to 2-time lung cancer patient and LCFA co-founder David Sturges about how early detection of lung cancer helped save his life. We'll also hear from lung cancer specialist Dr. Denise Aberle about the importance of early diagnosis. Finally, we'll get an idea of a new type of treatment that may make lung cancer surgery easier to perform and prevent a recurrence.
Guests
David Sturges, Lung cancer patient and LCFA Co-founder
Dr. Denise Aberle, Thoracic Radiologist at UCLA Medical Center
Kellie Smith, Ph.D., LCFA Young Investigator and Johns Hopkins Assistant Professor of Oncology
 
Episode 05 Show Notes
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.

04 - The Lung Cancer Conversation: How to tell family you have cancer

What does it feel like living with lung cancer day-to-day? Lung cancer patient and nurse Gina Hollenbeck weighs in. Plus, we drop in on Jill Feldman and Steven Petrow's discussion about an oft-dreaded conversation: how to tell the family you have cancer. Then, hear from Kim Norris about the recent good news about the impact of lung cancer and what she has witnessed in the development of lung cancer treatments over the past 10 years.
Guests
Gina Hollenbeck, Nurse and lung cancer patient
Jill Feldman, Lung cancer patient/advocate
Steven Petrow, Manners and civility expert and journalist
Kim Norris, LCFA Co-founder and President
Episode 04 Show Notes
Resources  Death Rate Drop: Lung Cancer Research Key
 
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.

03.6 - [SPECIAL NEWS] Coronavirus and lung cancer: Hear what lung cancer patients have to say

The Covid-19 pandemic has serious implications for everyone, but it's especially concerning for lung cancer patients. In this special episode recorded on 03/16/2020, we hear how some lung cancer patients are keeping up their spirits. Learn how they are filling the refrigerator while staying safe at home. Get the latest information on how Covid-19 can affect lung cancer patients from Dr. Ross Camidge, Director of Thoracic Oncology at the University of Colorado Hospital.
GuestsLCFA Speakers Bureau
Dr. Ross Camidge, Director of Thoracic Oncology at the University of Colorado Hospital
Kim Norris, Lung Cancer Foundation of America Co-founder and President
Episode 03.6 Show Notes

03.5 - [SPECIAL NEWS] Coronavirus and lung cancer: What you need to know

The global coronavirus (COVID-19) pandemic has serious implications for us all, but it's especially concerning for the immunocompromised. In this episode, we discuss what you need to know about coronavirus and lung cancer. We'll talk with lung cancer patients about how difficult it is to get a coronavirus test and the challenges families and caregivers have living with someone with lung cancer during COVID-19. Plus, hear from lung cancer specialist at Cedars-Sinai Cancer Center, Dr. Karen Reckamp, to understand how COVID-19 specifically affects lung cancer patients, and how can all do our part to protect our communities.
Guests
Janet Freeman-Daily, lung cancer patient and advocate
Lisa Goldman, lung cancer patient and advocate
Karen Reckamp, MD, MS Director, Division of Medical Oncology Associate Director, Clinical Research Cedars-Sinai Cancer
Kim Norris, LCFA Co-founder and President
 
Resources
03.5 Show Notes 
Covid-19 information on LCFAmerica.org
 
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.
 

03 - Lung Cancer Stigma: The things people say

Lung cancer brings with it an incredible set of challenges, including one that’s almost unique to lung cancer patients: THE STIGMA. Patients with lung cancer who never smoked are asked immediately about their smoking history by doctors, friends, even complete strangers. Jill Feldman has fought against the lung cancer stigma for years – she teams up with manners and civility expert, Steven Petrow, to talk about ways to handle the things people say when you tell them you have lung cancer. Plus, lung cancer researcher Dr. Alice Berger sheds new light on lung cancer in women, particularly young non-smokers.
Guests
Jill Feldman, Lung cancer patient/advocate
Steven Petrow, Manners and civility expert and journalist
Dr. Alice Berger, Researcher at Fred Hutchinson Cancer Research Center
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.
Episode 03 Show Notes

02 - What does it mean to be “living with lung cancer”?

 
Shelly Engfer-Triebenbach doesn’t sit still; she’s a very busy mom and music teacher – and now, an advocate for people living with lung cancer. Diagnosed with ALK lung cancer in 2013, we’ll talk to her about what it means to live with lung cancer day-to-day. We’ll also talk to researcher Dr. Alice Berger about her research and check in with LCFA Scientific Advisory Board member, Dr. Michael Weitz, about why research funding is so important.
Guests
Shelly Engfer-Triebenbach, Lung Cancer Patient/Advocate
Dr. Alice Berger, Researcher at Fred Hutchinson Cancer Research Center
Dr. Michael Weitz, LCFA Scientific Advisory Board Member
Episode 02 Show Notes
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org

01 - I have lung cancer- what now?

Lysa Buonanno talks about her lung cancer diagnosis and tumor marker tests pinpointed a specific biomarker that changed everything for her. Then, we'll discuss why Dr. David Carbone isn't offended by 2nd opinions, and hear from Kim Norris about her work to help people access the best possible treatments.
Guests
Lysa Buonanno, Lung Cancer Patient/Advocate
Dr. David Carbone, Thoracic Oncologist at The Ohio State University
Kim Norris, LCFA Co-founder
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.
Episode 1: Show Notes