Hope With Answers: Living With Lung Cancer
Find out what you need to know for your personal lung cancer journey through stories and interviews with patients, lung cancer specialists, and key participants in the quest for a cure.
Episodes
Thursday Mar 09, 2023
Thursday Mar 09, 2023
El cáncer de pulmón de células pequeñas (CPCP) es una forma rara y agresiva de cáncer de pulmón. Los tratamientos tradicionales son una combinación de quimioterapia y radiación. Pero, gracias a los avances en la investigación del cáncer de pulmón, nuevas posibilidades de tratamiento están disponibles. Estos nuevos tratamientos están diseñados para prolongar la vida y ayudar a los pacientes a tener una mejor calidad de vida. Como dice Mari Casanova, paciente de CPCP: "No te puedo decir cuánto tiempo voy a durar, pero lo que si te puedo decir es cuánto tiempo he estado sana. Y han pasado tres años".
Invitados:
Dr. Christian Rolfo, Profesor de Medicina y Director Asociado de Investigación Clínica en el Centro de Oncología Torácica del Instituto de Cáncer Tisch.
Mari Casanova, una mujer de Florida que vive con cáncer de pulmón de células pequeñas, síguela en Twitter.
Notas del programa | Transcripción | Ver el vídeo
Recursos adicionales
Tratamientos para el cáncer de pulmón de células pequeñas: novedades
Cáncer de pulmón de células pequeñas: lo que necesita saber
Thursday Feb 09, 2023
¿Cómo ayuda un navegador de pacientes a un paciente con cáncer de pulmón?
Thursday Feb 09, 2023
Thursday Feb 09, 2023
Los navegadores de pacientes pueden ayudar a entender sus opciones de tratamiento para el cáncer de pulmónUn navegador de pacientes ayuda a los pacientes a entender sus opciones de tratamiento para el cáncer de pulmón y la importancia de las últimas investigaciones y ensayos clínicos. Esto incluye asistir al paciente a través de la detección, el diagnóstico, el tratamiento y el seguimiento del cáncer de pulmón.
INVITADOS:Estelamari Rodríguez, co-directora de oncología médica torácica en el Sylvester Comprehensive Cancer Center de la Universidad de MiamiGrisel Fernández-Vega Martínez, enfermera de enlace
Grisel Fernández-Vega Martínez, enfermera de enlace
Notas del episodio | Transcripción | Versión de vídeo
“Primero hay que hacer un diagnóstico correcto para entender las células y entender cómo tratarlas mejor. Y creo que para cualquier paciente que tenga un diagnóstico de cáncer tan grave, que otro centro médico evalúe la patología y haga recomendaciones, abre más puertas de opciones para el paciente. ” – Dra. Estela Marks Rodriguez
Thursday Jan 26, 2023
Could CBD Oil Help Lung Cancer Patients?
Thursday Jan 26, 2023
Thursday Jan 26, 2023
In Part 2 of this Hope With Answers series on CBD, Cannabis, and Lung Cancer, we discuss the differences between CBD oil and hemp oil and what’s happening on the CBD clinical trials horizon. Once again, Jacquelyn Bainbridge, a clinical pharmacist at the Skaggs School of Pharmacy and Pharmaceutical Sciences at the University of Colorado Anschutz Medical Campus, joins us to talk about her clinical research, including work on cannabis clinical trials with hopes that CBD could help lung cancer patients.
“CBD potentially, or has a potential, to alter the immune environment and stimulate a response. So where that may be helpful is in patients with non-small cell lung cancer because it seems to be more responsive to immunotherapy. So it might be more likely to help that population.”
- Jacquelyn Brainbridge, PharmD, FCCP
Guest:
Jacquelyn Bainbridge, PharmD, FCCP: Clinical Pharmacist at the Skaggs School of Pharmacy and Pharmaceutical Sciences at the University of Colorado Anschutz Medical campus
Show Notes | Watch the video | Transcript
LCFA’s mission is the improvement in survivorship of lung cancer patients through the funding of transformative science.
While raising funds to support lung cancer research, LCFA will raise the public’s awareness and serve as a resource for patients or anyone seeking answers, hope, and access to updated treatment information, scientific investigation, and clinical trials.
You can also join the conversation with LCFA on Facebook, Twitter, and Instagram.
Thursday Jan 12, 2023
CBD, Cannabis, and Lung Cancer: What Does the Latest Research Say?
Thursday Jan 12, 2023
Thursday Jan 12, 2023
Could CBD and/or cannabis help lung cancer patients? A clinical pharmacist at the Skaggs School of Pharmacy and Pharmaceutical Sciences at the University of Colorado Anschutz Medical campus talks about her work assisting neurology patients and her clinical research, including work on cannabis clinical trials.
In this episode, Jacci Bainbridge, clinical pharmacist, answers questions about symptomatology of CBD & cannabis, the basics about the different forms of CBD/THC, and the importance of quality clinical trials for potential improvement in lung cancer treatments involving CBD or cannabis.
Guest:Jacquelyn Bainbridge, Clinical Pharmacist at the Skaggs School of Pharmacy and Pharmaceutical Sciences at the University of Colorado Anschutz Medical campus
Show Notes | Watch the Video Podcast | Transcript
Friday Dec 09, 2022
Inmunoterapia para el tratamiento del cáncer de pulmón: un cambio de juego
Friday Dec 09, 2022
Friday Dec 09, 2022
Entendiendo los nuevos tratamientos para el cáncer de pulmón, incluyendo la inmunoterapia, que permite que su sistema inmunitario ataque las células cancerosas, es un gran avance para algunos pacientes. Sentirse seguro para pedirle a su médico que le haga pruebas para ver si la inmunoterapia o la terapia dirigida es un tratamiento apropiado es muy importante para todas las familias, pero especialmente para las familias latinas e hispanas que pueden sentirse incómodas al cuestionar a su médico. Considerando los ensayos clínicos en los que puede recibir el medicamento del mañana hoy también puede afectar significativamente los resultados del tratamiento de un paciente.
Aprenda sobre la inmunología para el cáncer de pulmón y cómo este tratamiento permite que el sistema inmunitario de un paciente ataque sus células cancerosas. La Dra. Estelamari Rodríguez y la paciente Matilde Quintana hablan sobre cómo este tratamiento innovador es un gran avance para muchos pacientes con cáncer de pulmón.
Invitadas
Dra. Estelamari Rodríguez, Co-Líder del Grupo de Enfermedades del Sitio Torácico en Sylvester Comprehensive Cancer Center.
Matilde Quintana fue diagnosticada en 2016 con cáncer de pulmón en estadio IV. Su diagnóstico actual es No Evidencia de Enfermedad (NED).
Notas del Programa | Transcripción | Versión de vídeo
Agradecida por el gran apoyo familiar y la influencia de sus raíces, Matilde quiere compartir su experiencia y sobre estos tratamientos que dan esperanza para combatir el cáncer de pulmón. Este conocimiento es especialmente necesario en las comunidades latinas e hispanas cuando se trata de importantes decisiones de atención médica, como pruebas de biomarcadores, tratamientos para el cáncer de pulmón y ensayos clínicos.
Thursday Sep 22, 2022
What is my biomarker? THE question to ask
Thursday Sep 22, 2022
Thursday Sep 22, 2022
What is my biomarker?
A newly diagnosed lung cancer patient should ask this question before starting treatment. Why? Because the answer to this question can change the odds and the choices for your personalized treatment plan, especially for Black or African American patients.
Black and African Americans must ask their doctors, “What is my biomarker?” to ensure they receive the latest targeted therapy treatment that is applicable. Hear from Dr. Sydney Barned and Brandi Bryant in this episode as they discuss their care and what a difference it made in knowing their biomarkers. And maybe even more importantly, they are advocating that every black or African American should ask that question, “What is my biomarker?”
There are more options for treating lung cancer and they want to make sure every black or African American patient, like everybody, else gains access to that full range of options.
Why do Biomarkers matter in lung cancer treatment?
Minority and underserved communities must advocate for themselves to get the best treatments, especially treatment that can increase the quality of their lives. Guest Dr. Osarogiagbon dives into not only the importance of asking, “what is my biomarker?”, but why it is essential that Black and African Americans make this question a priority. Thanks to lung cancer research, he’s really excited that lots of biomarkers have been discovered to help doctors split what used to be a single disease, into a disease of many different bits and of different sizes.
Understanding biomarkers now allows doctors to predict how the cancer is going to behave. And then determine what treatment is most likely to benefit the patient, in terms of surviving lung cancer - and the quality of life, in response to cancer treatment.
“So, you go from 4% to 6% five-year survival, to up to 60%, if you get the right treatment for right cancer. As with ALK mutated lung cancer, so with some of the other subsets, the EGFR mutated lung cancers, the ROS1 mutated lung cancers, the BRAFF mutated lung cancers, the MET exon 14 mutated lung cancer, all... There are at least nine subsets of biomarker-driven lung cancers, and that continues to change all the time. So, that's why it's vital that we get tested, so we know which treatment would benefit us.”
- Dr. Raymond Osarogiagbon
Guests:
Dr. Sydney Barned, a hospitalist at Ann Arundel Medical Center in Annapolis, Maryland, a lung cancer patient, and a member of the LCFA Speakers Bureau
Brandi Bryant, a lung cancer patient, and a member of the LCFA Speakers Bureau
Dr. Raymond Osarogiagbon, Chief Scientist for Baptist Memorial Health Care, Director of Baptist Cancer Center’s Multidisciplinary Thoracic Oncology Program and Thoracic Oncology Research Group, and Principal Investigator of Baptist’s Mid-South Minority-Underserved Consortium initiative, NCORP, in Memphis, Tennessee
Show Notes | Transcript | Watch the video
Resources:
What Do I Need to Know About Biomarker Testing?
National Comprehensive Cancer Network (NCCN) Guidelines for Non-Small Cell Lung Cancer
What is a Liquid Biopsy for Lung Cancer?
7 Signs of Lung Cancer You Should Know
Thursday Aug 11, 2022
How a nurse navigator helps map lung cancer care
Thursday Aug 11, 2022
Thursday Aug 11, 2022
There is so much hope in lung cancer today. But lung cancer is also inherently very complicated. And the process of getting to a treatment plan takes a lot of expertise, different members of a medical team, and lots of tests. And one way to make this process easier on patients and more efficient for doctors who are making those treatment plans is to use an expert called a patient or nurse navigator.
Guests
Charity Holien, RN, a patient navigator with the University of Colorado Cancer CenterRoss Camidge, MD, PhD, Director of the Thoracic Oncology Clinical and Clinical Research Programs at University of Colorado Cancer Center
Video Podcast on YouTube | Transcription
Resources
A Lung Cancer Diagnosis: What’s Next
The First 7 Days podcast series
What Do I Need to Know About Biomarker Testing?
LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.
Thursday Jul 07, 2022
Comprender los biomarcadores del cáncer de pulmón
Thursday Jul 07, 2022
Thursday Jul 07, 2022
Un diagnóstico de cáncer de pulmón llegó de repente para Emma Pompeo. Pero afortunadamente, ella tenía dos cosas a su favor: apoyo de su familia cuando aprendió de su diagnóstico y encontró a un doctor en un centro de cáncer comprensivo que podía contestar sus preguntas en español para que ella y su familia pudieran entender toda la nueva información. Su doctor le explicó bien sobre los biomarcadores de cáncer de pulmón, organizó los exámenes requeridos, y dio buenas recomendaciones de otros doctores quienes ayudaron a formar su equipo de salud. Estos diálogos eran increíblemente importantes mientras ella aprendía el nuevo vocabulario que es parte del diagnóstico de cáncer de pulmón y del tratamiento apropiado.
INVITADOS
Dr. Christian Rolfo es un Oncólogo Torácico y experto en oncología molecular, biopsias líquidas y desarrollo de nuevos fármacos en el ámbito de cáncer de pulmón y mesotelioma en el centro de Oncología Torácica de Mount Sinai.
Emma Pompeo está viviendo con EGFR cáncer de pulmón. Ella dedica tiempo a ser una luchadora para pacientes, apoyando a otros en su experiencia con cáncer de pulmón.
Notas del Programa | Transcripción
Thursday Mar 31, 2022
What every EGFR patient needs to know
Thursday Mar 31, 2022
Thursday Mar 31, 2022
For years, researchers knew different factors were causing lung cancer tumors to grow, but they didn't know why, or how to interrupt the process. Then, a group of lung cancer researchers discovered the EGFR biomarker, which opened the door for targeted therapies that were easier to take, more effective, and led to better patient outcomes than anything used before. Take this opportunity to hear from someone who had a part in discovering the first lung cancer biomarker. Learn more about the EGFR biomarker from Dr. Carbone – important information that every EGFR patient needs to know.
Guest
Dr. David Carbone is a lung cancer clinician, researcher and specialist at The Ohio State University Comprehensive Cancer Center. He’s been working on developing treatments for lung cancer for years, and played an important role in discovering the first targeted therapy aimed at the EGFR biomarker.
Transcript | Video Podcast
Friday Feb 04, 2022
EGFR Biomarker Community: Hope Living With Lung Cancer
Friday Feb 04, 2022
Friday Feb 04, 2022
A lung cancer diagnosis can be very overwhelming. How do you make a connection and create a sense of community with people who truly understand what you’re going through? Hear from two people living with EGFR lung cancer who are creating connections among others with the same biomarker. Learn how sharing experiences, information, and understanding, is creating hope with answers for those in the EGFR biomarker community - while advocating for more lung cancer research.
Guests:
Jill Feldman, lung cancer patient/advocate, follow her on Twitter @jillfeldman4
Ivy Elkins, lung cancer patient/advocate, follow her on Twitter @Ivybelkins
Podcast Transcript
Meet patient advocates Jill Feldman and Ivy Elkins. They are working hard to level the playing field for people living with EGFR lung cancer by:
making sure that everyone has access to the best treatments and information
building a network of support for people living with the same type of lung cancer they have.
Resources:
What do I need to know about biomarker testing?
Targeted therapies for lung cancer treatment
EGFR Resisters, a patient-driven community dedicated to improving the outcomes for those with EGFR positive lung cancer.